However, I recently found myself troubled by something pertaining to fundraising on behalf of people with Down syndrome. As I mentioned above, research generally includes scientific understanding of the causes and effects of the disease or disorder, with an eye toward treating and curing those afflicted and, ultimately, to preventing the disease or disorder in question from occurring in the future. That said, the question that troubled me is this: what is the ultimate goal of Down syndrome research? I am absolutely in support of a deeper scientific understanding of the causes and effects of DS. I am absolutely in support of researching better treatments, and ultimately cures, for the negative symptoms or health issues that people with DS may experience. I suppose, curing a person with Down syndrome would mean being able to remove the extra chromosomal material from any and/or every cell in a persons body before it has any negative affect, or reversing the negative affect that extra chromosomal materials has on the individual.
But, let's say we succeed in preventing Down syndrome this way. Eventually, people like my beautiful Little Men would no longer exist in this world. I simply cannot imagine how our world could be a better place without the likes of my children. My Boys and all people with Down syndrome teach us so much about acceptance of human differences that extend so far beyond this one affliction. My Boys help me to focus on my blessings.